PREGNANCY AND CHILD LOSS

My child will likely die in childbirth or soon after.

Below, we have included a list of resources that address difficult and fatal prenatal diagnosis. If you have discovered that your preborn child may one of these conditions, here’s what you can do:

  1. Talk to your family about your pregnancy and your child’s diagnosis.

  2. Research for more information about the diagnosis. Contact organizations and support groups so that you can talk to others who have shared this experience.

  3. Find a specialist trained in handling pregnancies.

  4. Work with your doctor to prepare a plan to ensure that you and your child receive the proper medical attention during the pregnancy and after birth.

  5. Locate a hospital that is equipped to deliver and care for your child. (The hospital should have a Level III newborn intensive unit.)

  6. Talk with your family about your expectations and needs after your child is born.

Please see also our page regarding stillbirth so that you may have those resources available if needed.

Perinatal Hospice and Palliative Care

https://www.perinatalhospice.org/

Facebook: https://www.facebook.com/PerinatalHospice/

Contact: https://www.perinatalhospice.org/contact

PerinatalHospice.org is a clearinghouse of information about perinatal hospice & palliative care, including many resources for parents and caregivers as well as an international list of more than 300 programs.

 

Be Not Afraid

http://www.benotafraid.net/

Facebook: https://www.facebook.com/BeNotAfraid.Net/

Email: tracy.winsor@benotafraid.net

Contact: http://www.benotafraid.net/Contact-Us

Be Not Afraid (BNA) is a private non-profit organization which provides comprehensive case management to parents carrying to term following a prenatal diagnosis. Our staff and peers strive to develop a relationship of trust while providing for the emotional and tangible needs of parents at diagnosis, during pregnancy, at birth and during the post postpartum period for up to one year.

 

Prenatal Partners for Life

http://prenatalpartnersforlife.org/

Email: mary@prenatalpartnersforlife.org

Phone: (763) 772-3868

Prenatal Partners for Life is a group of concerned parents, medical professionals, legal professionals and clergy whose aim is to support, inform and encourage expectant or new parents with a special needs child. Prenatal Partners for Life is dedicated to providing families, either expecting, or those who have had, a child with special needs or a life-limiting condition, the support, information, and encouragement they need to make informed decisions involving their preborn or newborn child’s care. Their goal is to provide honest, practical information and support about parenting a child with special needs by linking expectant parents or new parents with other parents who have had the same or a similar diagnosis. This support can be provided in person, over the phone, by email or in written correspondence and may include a variety of practical support that is based on each family’s individual needs.

 

Fetal Health Foundation

https://www.fetalhealthfoundation.org

Facebook: https://www.facebook.com/FetalHealth

Phone: (980) 224-0398

Email: info@fetalhealthfoundation.org

The Fetal Health Foundation is a 501(c)(3) non-profit charity that provides factual medical information on fetal syndromes, provides unconditional support to families dealing with these syndromes, provides advocacy and awareness around fetal syndromes and provides research grants funding new treatments and technologies providing hope to save our babies.

 

All That Love Can Do

http://allthatlovecando.blogspot.com/

Email: RememberingSamuelEvan@gmail.com

All That Love Can Do provides support for families who choose to continue their pregnancies after a fatal diagnosis. This blog offers testimonies from families’ like yours, as well as helpful guides and recommended resources.

 

NICU Helping Hands

https://www.nicuhelpinghands.org/programs/angel-gown-program/

Facebook: https://www.facebook.com/nicuhelpinghands/

Phone: (817) 668-5191

Email: info@nicuhelpinghands.org

NICU Helping Hands is an organization that develops hospital and community-based projects that provide education and support for families with babies in the neonatal intensive care unit (NICU), during their transition from hospital to home and in the event of an infant loss.

  • Our Angel Gown® Program

  • Project NICU

  • NICU Mom CONNECT

  • One-On-One Mentoring

  • Family Assistance Program

 

Now I Lay Me Down to Sleep


https://www.nowilaymedowntosleep.org/

Facebook: https://www.facebook.com/nilmdts/

Phone: (720) 283-3339

Email: headquarters@nilmdts.org

Now I Lay Me Down to Sleep (NILMDTS) offers the gift of healing, hope and honor to parents experiencing the death of a baby through the overwhelming power of remembrance portraits. Professional-level photographers volunteer their time to conduct an intimate portrait session, capturing the only moments parents spend with their babies. Parents are gifted with delicately retouched heirloom black and white portraits free of charge.

 

The Littlest Angel Gowns

https://thelittlestangelsgowns.com/

Phone: (402) 415-8167

The purpose of The Littlest Angels Gowns is to provide comfort and support to grieving families that have suffered the death of a baby. The baby burial gowns, wraps, and blankets are given to Neonatal Intensive Care Units for babies who die in the neonatal period. They are also given to labor and delivery units for stillbirths, and miscarriages, as well as to organizations that support the families during this difficult time.

 

The TEARS Foundation

http://thetearsfoundation.org/

Email: admin@thetearsfoundation.org

Phone: (253) 200-0944

The TEARS Foundation seeks to compassionately lift a financial burden from families who have lost a child by providing funds to assist with the cost of burial or cremation services. TEARS believes that every child’s life deserves to be honored and memorialized in accordance with the grieving parents’ wishes and are committed to helping bereaved parents with this experience. TEARS also offers parents comprehensive bereavement care in the form of grief support groups and peer companions.

 

Catholic Miscarriage Support

http://www.catholicmiscarriagesupport.com/

Email: admin@catholicmiscarriagesupport.com

Catholic Miscarriage Support is a comprehensive miscarriage information and support website facilitated by lay Catholics. *There are many resources and information on this website that can be useful to pregnant mothers, regardless of your faith background.* The site provides in depth information on the physical and medical aspects of miscarriage and stillbirth deliveries. It addresses hospital preparation and navigation (including how to address a bad hospital experience). For those in need of spiritual guidance, Catholic Miscarriage Support provides guides for naming your child, burial, prayers, and so forth.

 
Previous

My child was stillborn.
Next

I'm grieving the death of my child.